Today Evan Carroll and I are hosting a core conversation at SXSW.
Evan and I have been writing around this topic for a while and have a few articles that may be of interest.
At SXSW 2014: You're probably only seeing this because you know about the session at SXSW. This article gives you background information on why Evan and I are interested in this topic.
Is it politically correct to say disabled? And do we even care about what is politically correct? Hint: I worry less about being politically correct, and more about the capabilities of the individual.
Recollect: Archive your Online Life: An overview of a subscription-based tool which allows individuals to archive their digital lives.
ALS is a bit too much to handle. Even for little ole inspirational me: We often say those who are living at life's fringe are inspirational. It's the vocabulary we use when we don't know how someone is facing a difficult situation. Guess what? They don't want to be inspirational. But they may need your help.
Tips for caregivers learning about Alzheimer’s: You're dealing with someone who has Alzheimer's on a regular basis. People give you tips, but sometimes it takes a while for them to sink in. I break it down for you here.
What will the next billion internet users look like: The internet changes the way we interact with our communities. This infographic looks at how the next generation of internet users may be different from us.
Don't ask what someone needs, offer ways to help: There is a period of adjustment whenever something unexpected happens to interrupt our daily lives. These interruptions can by joyous (a new baby), sad (a death) or permanent (a long-term caregiving situation). People often say they want to help. Here's a list of 14 things you can do to help someone. Pick one or two.
- It's not just about losing your memory: People misunderstand what it is like to provide caregiving for people with Alzheimer's. It's not just about losing your memory; there are a million other milestones you have to deal with first. This will help you understand what it means to be a caregiver.
- Born Just Right: Jordan, and her family, help those with limb difference find a community. In this article, you get a chance to meet one of the most fun kids you'll ever know.
- 7 tips for online communities: A few tips for those who are looking to build, or join, an online community.
- How to prepare for your digital afterlife: Here you can gain access to a *free* ebook to help you prepare for your digital afterlife.
- Clothing designed to protect you against disease transmission: Sounds like some pretty sci-fi shit, right? This. stuff. is. awesome.
- When positive messages cause negative results: Researchers have long been interested in studying the transmission of information on social media and comparing it to the spread of infectious disease. Sometimes the scientist learn things those of us on social media really need to pay attention to.
- An introduction to the Digital Beyond: What happens to your digital identity after you die? This video explains the issues of death and the opportunities brought about by technology and the Internet.
- Robot caregivers: It may be a slightly creepy concept now, but I swear one day we are all going to want (and have) robot caregivers. I want one now!! Especially if it will help clean the house!
- Opening personal financial conversations with your family: OMG, guess what? Dealing with the disabled and death takes money. And it helps to talk about wishes. Here are a few tips to help get the conversation started.
- Infographic: A guide to digital estate planning: An interactive infographic that helps you understand where you need to go to start planning your digital estate.
- Modern day mourning bands: You know those tacky cause bracelets? Maybe we should be thinking about them differently.
- We can help solve US healthcare problems by evaluating lifestyle and genetics: It's kind of a no-brainer, but worth talking about. A few ideas and a few recommendations for further reading.
- My 23andMe results: Serving as a caregiver for one of my family members got me a little curious about my genetics. Before the FDA shut the genetics part down (thankfully!!).
- Digital death and afterlife online service providers: A list of services to help you prepare for your digital assets.
A few articles above are from The Digital Beyond, a blog about your digital existence and what happens to it after your death. The Digital Beyond is the go-to source for archival, cultural, legal and technical insights to help you predict and plan for the future of your online content. The Digital Beyond is co-written by Evan Carroll and John Romano.